Comments about Truvada, from Truvada users

h/t Christoph.

This will be a very short post, but I think it is worth pointing out because this story is alarming.

A reader recently alerted me to some comments that have been left on Facebook ads for Truvada lawsuits (I guess those are no longer being censored) regarding the horrific adverse events patients have experienced. I can’t actually access the Facebook pages, but, with permission, I am reposting some of the adverse effects experienced by Truvada prescribees (is that a word? It might not yet be) that my reader alerted me to in his comment. This information is too important to languish in the comments section, so I’m repeating it here. Beware, it’s a doozy.

Made me have avascular necrosis & had to have bilateral hip replacements

I have taking and had problems with my back teeth

They all contribute to health issues…

I’m in Stage 3 kidney disease because of Truvada. After 16 years I’m blessed to be alive. Seems wrong to sue for the medication that kept us living back in the day. I could use a windfall as much as the next person, but somehow I prefer to be grateful rather than dwell on the past. Truthfully I think the lawyers are the ones making a windfall. Those of us on Disability sure are not.

My teeth and jaw bone are a mess and I have to go on antibiotics to keep from having teeth infections on a regular basis. And I was supposed to have the last of my teeth removed and implants put in instead.

My gf took that and has some unusual side effects that still have an effect on her daily life,considerable pain

I don't have hiv but took this and it made y bones and angles rigid to point I said no more

I lost my right kidney and now I know why.

[In response to comments about Truvada not giving them any side effects} I was on it for six years. Then it attacked my kidneys. Be very careful.

I wonder if My new hips are because of crap medicine

It would give me terrible nightmares. Scary, graphic, bloody nightmares

2 hip replacements before the age of 50 and decimated teeth, no family history of arthritis or bone loss. I've had spurs removed 3 times, but I lost my hips and teeth. My litigation is in it's 8th year. They knew, but didn't say a word. They reformulated, but the damage was already done to some of us...

have had to have all six joints replaced

How about Biktarvy? I almost had kidney failure due to taking that...

I took this for year's for HIV, Now I am dealing with major Liver issues.

Happy I got off of it because I didn't like the side effects

Has the atripla settled, I took it for about 10 years and always had high liver readings……. Now as years have passed I have liver failure and chronic pancreatitis….. along with several other issues that I’m still working on figuring out….. like leg pain I’ve complained about for 15 years but now finally my doctors are listening to me now that I’m in my late 30’s go figure.

There was a class action in Dallas that wouldn't take my case even though all my teeth are rotting out my head

I have major teeth issues and also came down with toe nail and nail fungus which took 4 years to ged rid of from this medication I was on it for 2 years it has differant side effects on every one

I was on Truvada for 3 months. My new doctor was upset that my past doctor prescribed it. I'm on Genvoa now. No more aches. My knees we hurt bad and I had surgery on one. Now the other is acting up.

I took Genvoya in 2005 until they gave me Truvada in 2010 and now on Bktarvy.

I have stage four kidney disease, low vitamin D, high cholesterol and would like to talk to someone please

It made me so deathly sick

I've been taking icentress and Truvada for a solid 20 years and I've been undetectable for 20 years. Truvada has caused me both kidney and Bone problems but nothing major except for my teeth. I kind of feel guilty about suing them because I've been taking them for so long and they've worked so well.

lost my teeth, major heart problems, neuropathy and caused me to become diabetic even though I’ve never been overweight.

I took it for many years and it helped destroy my liver. Recovery took five years.

Part of Class Action lawsuit for years. Took out my kidneys and teeth

I was involved in a class action lawsuit against the company because of the damage of my kidneys and after all the lawyers got the income it was only $3,000 for my compensation. Nothing compared to the damage of my kidneys

I already have my lawyers fighting for me for this case that caused me, bone density teeth, loss, and kidney failure. It’s time to get Gilead pharmaceuticals for the pill Truvada

took, out my right kidney

This is insane, people. How is this not front page news? Why is the Truvada disaster being suppressed? We have tooth loss, broken bones, heart problems, diabetes—this has to stop. They even mention liver issues, which is likely why the protease inhibitors have largely disappeared. And these comments are only from a small fraction, most likely, of people that have experienced severe debilitating effects from Truvada and other “anti-HIV” drugs.