Report: “Very Severely Ill” ME/CFS Patients “the most neglected” in Denmark

Documentation of the Danish government's extraordinary mistreatment of its citizens with ME/CFS

Danish psychologist Peter la Cour took a deep dive into the dire conditions in which ME/CFS patients live, particularly the very severely ill. In his study of patients with “very severe ME/CFS” in Denmark, he found that “the participants received very little help from medical professionals and health services such as institutions and hospitals.” In fact, la Cour found, “the relations between patients and the health system were generally characterised by mutual distrust.” (1)

This is not breaking news. Numerous other researchers have published studies about how neglected and abused ME/CFS patients are, in Europe as well as in the U.S. (2-16)

Nevertheless, la Cour’s study is a comprehensive look at the neglect and abuse endured by this very sick patient population in the Scandinavian country.

La Cour’s “Impact Statement” in this paper is damning:

“The most severely ill patients with ME/CFS are bedbound and are completely dependent on external care. Relative to their dire condition, the part…