A Small Group of ME/CFS Patients has Damaged Joints and ... Wait, What??

Meanwhile, “No Suffering Is Equal,” wrote a former doctor of living with ME/CFS

A recent research report funded and conducted by investigators from the ME/CFS advocacy organization Solve M.E.— a 501(c)3 non-profit organization in Glendale, CA—looked at the correlation of a joint disease, Ehlers-Danlos Syndrome, with ME/CFS. The study examined self-reported histories from a patient registry also established by Solve M.E., the You + ME Registry.

Four researchers from Solve M.E. conducted the study. It’s difficult to determine their exact roles at Solve M.E. or their educational and research backgrounds, since only Leslie E. Phillips, PhD, is listed on the organization’s website. A Consulting Senior Advisor, Phillips is an epidemiologist.

“Despite its significant impact, the disease's etiology remains poorly understood, and symptom heterogeneity poses challenges for diagnosis and treatment,” Phillips and colleagues from Solve M.E. noted at the beginning of their report. (1)

So, for some reason, they chose to examine the prevalence in ME/CFS patients of a little-known g…